Continuous EEG Video Telemetry Scheduled

The Cedars Sinai neurophysiology department called today and I now have a schedule for the continuous EEG video telemetry. It is scheduled for September 10th through the 12th. The stay may be shorter or longer depending on how things go, but the maximum number of days will most likely be five days if necessary.

I am a bit anxious. The EEG should provide a clearer picture of the cause(s) of my ongoing issues with these episodes I've been having. However, I am afraid of the "what if." The what if it doesn't and the unknown path that will come along with this.

Traveling down this long road of uncertainty, anything that provides a perception of certainty is certainly a sight for sore eyes. First it was the needle biopsy which would provide a diagnosis, then it would the craniotomy which would provide a more concrete diagnosis and also resection of the tumor, next came the radiation therapy which was part of the treatment protocol to manage the tumor, and now it's the EEG to assess that my episodes WILL be considered seizures and the established steps will be taken to treat these "seizures."

UC Health System and Blue Shield Come to Insurance Resolution

The UCLA Health Center and Blue Shield finally came to a resolution regarding the insurance flap between the two parties. Just a recap, the last contract between the two parties ended December 31, 2011 and all UC health facilities have been out of Blue Shield's network since then. Suffice to say, this has caused of a lot of stress for me along with, I'm sure, many other patients receiving care at UCLA and other UC health facilities. I am grateful for Blue Shield's Continuity of Care Services waiver program, but it has not been without it's share of problems and heartache. Starting September 1, 2012, the UCLA Health Center and it's affiliates will once again be within Blue Shield's network. The new contract will be effective through June 30, 2015.

At this point, I will remain at Cedars Sinai for now. One reason that has lessened any confusion on my part of whether to go back to UCLA is the good rapport between Dr. Lai and both Drs. Hu and Chung at Cedars. So far, the sharing of information between Cedars and UCLA has been seemless. Dr. Hu and Dr. Chung both know Dr. Lai well and have seem open in including Dr. Lai if need be. I contacted Dr. Lai about the news and he just wants what's best for me.

If for some reason, I do need another biopsy, this will be a tougher dilemma. I have read and heard that Dr. Wu at Cedars is a very well respected neurosurgeon who is also responsive to his patients. However, Dr. Liau at UCLA has set such a high standard that it would be difficult not to go back to her. Additionally, the Ronald Reagan UCLA Medical Center nursing staff also set a  very high standard.

Overall though, I do feel very grateful that I now have choices again and UCLA is again on the table along with UCI and the other UC health facilities.